Chronic Pain Rights & Responsibilities

Laughing, Loving, and Living With Chronic Pain and Illness

Archive for the month “June, 2016”

Kolodny’s Phoenix House drug rehab spun out of control

Part II of the Expose of Kolondy’s “Six Degrees of Separation” Where is mainstream media on this?!

EDS and Chronic Pain News & Info

Celebrated drug rehab center spun out of control, Reuters finds

In my previous post, PROP conflict of interest in Phoenix House rehabs, I explain how the president of PROP is the medical director of this shady business.

Belle Terre, the former home of a 19th-century copper baron, housed the 168-bed Phoenix House Delaware County Center, a private, nonprofit residential drug treatment facility. When Szczupak arrived in June 2012, all was not well behind Belle Terre’s stately walls.

In the two years prior to Szczupak’s arrival, New York’s Office of Alcoholism and Substance Abuse Services (OASAS) had twice closed Belle Terre to new admissions after inspectors discovered illegal drug use, insufficient treatment and bad record-keeping, among many other regulatory violations. In each case, Belle Terre resumed admissions after Phoenix House submitted a “corrective action plan” to regulators.  

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PROP conflict of interest in Phoenix House rehabs

THIS IS IT!! I have been writing and discussing the “Six degrees (or fewer!) of separation” between Kolondy and ANY anti-opioid movement in this country, now y’all can call me a conspiracy theorist, but I’m not the only one!!

EDS and Chronic Pain News & Info

Doctor: Overprescribing contributing to opiate epidemic – News – – Hyannis, MA

Here are the radical and unscientific views of the president of PROP, which dovetail with his business interest: the corrupt and government-financed rahab/recovery industry.

Dr. Andrew Kolodny would not win a popularity contest with many others in the medical field. “I cross lines, in my interactions with my colleagues,” he said.

It’s disturbing when the leader of a the campaign against giving pain patients relief shows pride in his inability to get along with others.  

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Update: Changes In The Works

To everyone who follows me and everyone who has stopped in and read a piece or two, thank you for your interest. I will continue to post here on occasion, but as I do not get as much exposure here as I do on other sites, you will likely see pieces I’ve written for, The Mighty, International Pain Foundation (where I am a Delegate, now), and other pain and health sites. I also need to inform you that this is no longer a Fibromyalgia blog only. At the time I began this blog, I had been diagnosed with Endometriosis, Fibromyalgia, Interstitial Cystitis, chronic Migraines, and Uterine Fibroids.

Since then, I have spent a total of about three months (broken up into a week or two at a time) and have acquired a long list of new diagnoses. This list includes Complex Regional Pain Syndrome (CRPS), also known as RSD (Reflex Sympathetic Dystrophy), This neuro-autoimmune disease is one which effects one’s entire Central and Autonomic nervous systems, as well as many other bodily systems. It is not at all well known or well understood by doctors, and it is extremely difficult to convince doctors to educate themselves, or allow the patient to educate them.

Also, after a year of acute attacks of pain, post gallbladder removal surgery, I was convinced (by the location and specifics of my pain and symptoms) that I had Chronic Pancreatitis. However, after too many ER visits to count, where I was of course called a drug-seeker, and released, I finally developed a measurable symptom…the doctors didn’t tell me that, though. They simply said they wanted to keep me in the hospital for further observation and pain control. Just as one of the hospitalists was entering my room to tell me I would be discharged on the third day, I overheard the nurse saying that my liver enzymes where over 3000. I stopped the doctor mid “Goodbye speech,” and told him I was concerned about my elevated liver enzymes. He angrily asked me how I knew about that! Long-story short, I was kept for another week, ultimately receiving an ERCP with sphincterotomy. I was then diagnosed with Sphincter of Oddi Dysfunction.

I suffered another year, in and out of the ER and hospital, being dismissed as someone with “Chronic Abdominal Pain.” Until finally I went to a biliary specialist, who did another ERCP and placed stents in my liver and pancreas. I remained hospitalized for a week, finally getting the confirmation that I do in fact suffer from Chronic Pancreatitis. Consequently, I was hospitalized again, because the stent in my pancreas was causing a major attack (none of this EVER showed up on blood tests or imaging, by the way. So, if you think you might be suffering from any of thee conditions, PUSH until you get a diagnosis! But, be prepared to be accused of drug seeking and mental conditions, because doctors no longer use symptoms as a means if diagnosis. If it doesn’t show on a test, you don’t have it. Period. But, if you keep pushing, you’ll finally get the test that shows something. For me it was the ERCP. I’ve als developed Carpal Tunnel Syndrome and/or peripheral neuropathy–the diagnosis is still out on that one, too. I have become quite outspoken in the advocacy world, as a Delegate for the International Pain Foundation (formerly Power of Pain), as well as the Kentucky Pain Care Action Network, and as a regular columnist for

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